4 years ago today!
In other news, consult with Surgery (for the J-tube placement) isn’t until Aug. 6th. And that’s just the consultation.. It’s the soonest they can get me in.
I am on the list if any other patients cancel….hopefully these next 4 weeks will go by fast.
A lot of scar tissue is building up under the muscle biopsy incision (that’s the nature of EDS), so my physical therapist has been working on trying to break it all up. It’s so painful. I have a feeling CRPS is flaring up in that area, but we’ll see what my pain doc says next week.
Tomorrow, I see my neurologist to update her on all that’s happened. And the next few weeks, I have a lot of follow-ups with Physical Medicine, Neuro-ophthalmology, and Spine! That’s on top of all the therapy appointments. It’s been a busy summer already!
