A Visit to the ER

Kerissa • September 15, 2012

Well, friends, I had enough excitement for one day!  This morning, I had to go to the ER at OHSU. My drooping eye has been getting worse (it’s been horrible), so my mom called my spine surgeon’s office and spoke with a resident dr. on call. He said that I’d better get checked out because any facial symptoms (like a drooping eye) usually mean something’s going on in the brain. My ER dr. was super nice!  He really wanted to do an MRI, but my mom called St. Jude Medical to ask if getting one is really contraindicated, and they said I can’t get one. If I did, my device would probably malfunction and I’d possibly get an electrical surge through my body from the leads.. So I ended up getting a brain CT scan and a cervical spine CT scan with the lowest amount of radiation possible. The results show that I didn’t have a stroke.  That’s good news! So this rules out one thing, and now I just have to wait till Monday when I see the spine surgeon.. I could have a Chiari Malformation in my brain which is common with EDS (but they don’t show on CT scans), or the cervical spine instability is causing the drooping eye and headache.. My appointment can’t come fast enough! Thank you so much for your prayers. 

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. šŸ™ It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ā¤ļø
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23