~Day 1~

Hellooooo from Ohio!! Thank you so much for your prayers!  I so appreciate all of you!  I’m afraid this will have to be quick since I have a long day tomorrow.

My parents and I made it to Cincinnati safely. My mom and I were blessed to fly first class (thanks to mercy medical airlift!), but we didn’t get that much rest because it was a red-eye..  So we’re all super tired!

Right when we arrived in Cincy, I had to head straight to CCHMC for my first GI motility appointment.  It went very well! The dr. walked us through the extensive GI plan for this week.  The team is so thorough!

Right after my pulmonary medicine appointment tomorrow morning, I’ll be getting admitted to the hospital for at least a few days.  They’re going to insert an NG tube to “clean me out” for the tests. I won’t be able to eat Tuesday and Wednesday!  On Wednesday, I’ll be taken to the OR where Dr. K will scope my GI system and take biopsies of my esophagus, stomach, small intestine, and large intestine.  This will be done under general anesthesia, and since I am prone to malignant hyperthermia (my exome sequencing shows I have a positive gene mutation for this condition), GI put in an order for a consult with Anesthesia.  On Thursday, Dr. K will start esophageal, antro-duodenal, and colonic manometry testing.  That’s a mouth full!