Excited :)

Kerissa • August 23, 2012

Yesterday, I got trained to volunteer in the neonatal intensive care unit at St. Vincent’s.  It went great!  There definitely was a lot to learn!

  • We were taught how to use our ID badges to get past restricted doors.
  • We learned how to put together infant oral care bags that doctors use every day.  I have to stuff in 16 tiny syringes, 4 strips of labeled stickers, and 6 plastic cups in each!
  • We were taught how to keep rooms fully stocked with things ranging from gloves, gowns, and bottles, to baby clothes, blankets, and lots more!
  • We learned how to make labels for baby bottles and print different things to stuff in folders for new parents.

The NICU is currently on two floors, so I’m gonna get tons of exercise going back and forth!  In addition to all the above, sometime in late October, I get to be trained as a cuddler!!  That’s gonna be an awesome 20th birthday present.  So excited!  They need lots of cuddlers cuz so many of the babies have to be there for many months.  One baby girl has been there for over 70 days now!  There can be 50+ babies in the unit when at capacity.  They melt my heart.  It’s hard to believe I was once in an NICU myself when I was born!

I’m glad these Tuesday shifts will only be 4 hours long cuz at the end of training yesterday, my feet were really hurting from the CRPS!  But it’s all worth it.  This will be a great experience!

I know many of you are probably wondering how my left hand/arm is doing since the nerve block last week.  Well, to be honest, it’s kinda hard to say…  Thankfully the pain is still a lot lower than before the block, but the side of my palm is a little swollen again, and my fingers have been getting stiff at night..  But, I’m not gonna freak out.  We’ll see what my pain dr. says next month at my appointment.  He has the rest of August off, and I’m so glad that he can have this short break.  I realize more and more how much he sacrifices to help his patients like me.

In the meantime, I’m enjoying this beautiful weather!  One of the elders from my church came over this afternoon, and he and I each recited Philippians 1-2 and James 1-2!  My brain is fried now.

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23