Having the Blues
Kerissa • September 6, 2012
Feeling miserable right now, so please forgive me while I vent…
- My left arm/hand really hurts, and I still haven’t heard back from my pain dr. I have a feeling that he’s probably swamped since he just got back from vacation..
- I have had several canker sores in my mouth from the EDS so I have to stay away from citrus, vinegar, tomatoes, etc., which means I sometimes can’t eat what my family eats for meals..
- My neck, shoulders, and cervical spine are all feeling horrible from the cervical instability.
- Yesterday, I started getting a severe headache at the base of my skull, and it’s still not gone! Waiting to hear back from my pain dr. about what to do for this .. I called my primary care doctor’s office about this, and the nurse mainly told me to go the ED if things don’t improve and to see what my pain dr. says .
- In addition to all this, I’m either dealing with bad hay fever or am starting to fight something…I have a feeling it’s allergies. My eyes water and get dry, my throat itches, my nose runs, and I have some congestion.
- I sent a message to my pain dr. on Monday. I didn’t hear from him . So I called the pain center this morning, and the lady told me she’ll send a message to him to let him know that I’m waiting for a response, and I still haven’t heard from him which is so unusual cuz he always replies quickly!!
So now you can tell why I don’t feel good. Plus, I haven’t been sleeping as well because of the CRPS pain and the headache. They wake me up in the middle of the night!
If you think of it, please pray for me. Your prayers would be greatly appreciated! Hopefully my next post will be much happier..
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23
