In Heaven with Jesus

Kerissa • September 4, 2012

Liam has his wings and Heaven has a new angel, that bright shining star up above, Liam has changed us forever. Fly high baby boy – so many friends there waiting – until we see you again, Grandma Nanci said it best – we’re shattered. Your support has been overwhelming and we read many of your postings to him so he knew how much he was loved. We still BeLiEvE in Miracles.  -latest posting on Liam’s facebook page

There’s a hole in my heart now.  I’ve been blessed to follow his story for many months, and everyday I would have another reason to look forward to a new day.  Just by seeing his smiling face encouraged me in my trial to keep being strong in the pain. 

Today I’ve cried tears of joy and of sadness.  Tears of joy because this little 18-month old baby boy doesn’t have to suffer anymore.  His body will no longer be swollen from the HLHS.  He can learn how to walk and talk like other 18 month-olds, now that he has a new body in Heaven.  He doesn’t have to be confined to a hospital bed any longer.  

Even tho’ I don’t get to see new pictures and moments of your life anymore, I’m so happy for you, baby Liam.You get to have lots of fun with Jesus!  And one day, I get to meet you!

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23