It’s Official!
Wonderful news!
My appointment with the mitochondrial disease specialist at UCSD Medical Center is set in stone for June 17th! My parents, sis, and I will be there at least a week since the muscle biopsy is scheduled for Friday, June 20th as well. And after I see the dr. that Tuesday, we’ll know more then if he will order any additional tests, etc.
P.S. Please continue to keep Justina Pelletier and her family in your prayers. Her health is getting worse by the week, she’s losing her hair, and she’s swollen all over. This is a great article (written just today) by someone from MitoAction about the difference between medical child abuse and mitochondrial disease: http://www.mitoaction.org/blog/why-mitochondrial-disease-looks-nothing-medical-child-abuse It also includes an update on Justina. If you can’t finish the whole article, read paragraphs 3 and 4. We need to get her home!
