More Setbacks.

Kerissa • October 10, 2014

hooked up to tube feeds

Yesterday, I had a lidocaine and magnesium infusion for the CRPS pain.  We weren’t expecting any surprises because I’ve had both before, but you know me…  I have to keep things exciting!  Long story short, things went terribly and involved very high heart rates, slurred speech (that was scary), head-throbbing, and a feeling of passing out twice.  The pain team had to quickly give me a bag of IV fluids and stop all the medication drips.  So I didn’t really receive a good infusion… :/

If my insurance approves it, my pain dr. will be starting me on another pain medication.

In addition to all this, I’ve been dealing with a huge and painful mouth ulcer.  I haven’t been able to eat much at all!  It’s hard to talk, and this ulcer is my biggest one yet.  I’ve been getting mouth ulcers regularly for a long time now, so I have to see a dermatologist who specializes in oral mucosal disorders because we’re wondering if something else is going on.

This has been a challenging week, but I continue to press on!  To close, I want to share this beautiful quote that I read just today.

“Suffering is not the absence of goodness, it is not the absence of beauty, but perhaps it can be the place where true beauty can be known” ~ Kara Tippetts (a sister-in-Christ who recently wrote a book about her journey battling stage 4 cancer….she knows all about suffering!)

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23