MRA results and more!
Kerissa • March 13, 2014
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This is me in vascular form. That blue arrow I drew is pointing to my left vertebral artery—see how it’s kind of coiled and looped? That’s called tortuosity which is a new med term that I learned. People with tortuosity are prone to aneurysms/strokes, and my neurologist said it can be seen in patients with Ehlers-Danlos Syndrome. My cervical spine instability is putting stress on my arteries….so my neurologist wasn’t very surprised by this new finding. She said it’s just something to keep an eye on. |
I’ve also been dealing with decreased appetite and weight loss again.
I’ve been doing all that my GI dr. told me to do, but it’s not helping. So he referred me to their clinic’s nutrition therapist, and that appointment’s next month. We’ll see if she has any other insight to offer..
After PT and OT today, my mom and I were able to ride the tram up to the OHSU hospital again because I had to drop off my CPAP sd card at the sleep clinic front desk (my sleep dr. wants to take a look at the data to see if he needs to increase the CPAP pressure because I’ve been experiencing breathing problems due to tired respiratory muscles). OHSU gives free passes to patients! The ride was especially fun today because the weather was sunny and beautiful!
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For those who don’t live in Portland, this is what it looks like! Took this while riding the tram. |
I, the LORD your God, hold your right hand; it is I who say to you, "Fear not, I am the one who helps you." Isaiah 41:13
How unspeakably wonderful to know that all our concerns are held in hands that bled for us. -John Newton
"I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world." -John 16:33-
