Prayer Requests
Dear friends,
I’d really appreciate your prayers. The past few weeks, a bunch of different things have happened.
I wrote in the past how I have an eye muscle disorder called Progressive External Ophthalmoplegia which is from my mitochondrial dna depletion syndrome. In simple terms, it basically means eye muscle paralysis. For several years now, I slowly lost the movement of being able to move my eyeballs to look to the left, then up, then down.. But I was always able to look to the right.. Well, up until a few weeks ago. I suddenly noticed that I couldn’t look to the right well anymore which made me really sad.
Now I have to turn my whole head to look different directions. I saw my neuro-ophthalmologist in December, and everything was stable then. So this happening suddenly was hard to realize… I see her again next month for her to take a look.
Around the same time, something started happening with the hearing in my right ear. It’s hard to explain, but it’s like there’s a “short circuit.” There’s an almost constant buzzing sound, and that keeps me up at night.
I have a full evaluation with the neuro-otology (ENT) clinic at OHSU at the end of May. Maybe this is just a benign thing, but regardless, it’s still something I’ve had to adjust to..
On top of that, the past few days, I’ve been feeling crummy with tachycardia, elevated liver enzymes, nystagmus, and a terrible headache every day.
Not sure what’s going on, but I’d appreciate prayer that this will soon blow over, especially because my whole family and I are heading to Sunriver for several days at the end of next week. I don’t want this to be the start of a brewing “mito crash.”
I love you all and am so grateful for your prayers.
I thank God for his comforting promises like the verse I lettered above. He is faithful.
