Prayer requests

Kerissa • February 2, 2021

Hi friends,

I would really appreciate your prayers.

It’s been a hard past several weeks.  I’ve been experiencing severe leg pain every day (especially at night….I’m not able to fall asleep until after 3 AM every night).  We thought it was due to my ferritin being low, so my GI specialist ordered 2 IV iron infusions.

But then, after looking at my weekly lab work, we saw that my blood calcium level has been continuing to drop (this is called hypocalcemia).  Hypocalcemia causes “neuromuscular irritability,” so my legs have been aching horribly.😔 We’re not sure if this is due to progression of the hypoparathyroidism that I have (which is caused by my mitochondrial disease and Wilson’s Disease), so I have to get more blood work done.

I’m already on high doses of calcium every day, so my endocrinologist is having me increase a medication that I take called Calcitriol.  She’s also ordering an IV calcium infusion.  But it has to get authorized by my insurance first.  Could you pray that my insurance will authorize it quickly?  It’s so hard to wait because of how bad the pain is. :’(

On top of this, I’ve also been experiencing really bad pain in both of my wrists and the thumb-side of my hands.  I haven’t been able to hand letter, and I really miss it (the lettering pieces you may have seen me post are all older ones that I’ve saved). :’(  My hand therapist is having me wear these hand splints that she made for me.  She thinks she knows what’s going on, but I do see the orthopedic hand surgeon on February 9th to get an official diagnosis.  As you can see, it’s been really hard to have all this new pain on top of my regular chronic pain (small fiber neuropathy, headaches/migraines, back muscle spasms, etc.).

I read this verse the other day from Psalm 37:5.  It says, “Commit your way to the Lord; trust in him, and he will act.”  Just 2 verses later, it also says to “be still before the Lord and wait patiently for him.”

God tells us He WILL act for those who wait for Him (Isaiah 64:4).  I need to wait patiently, but it’s easier said than done—and it’s hard.  So very hard to deal with one thing after another.  I know I used the word “hard” so many times.  That’s because it is….but I remember all that’s happening is another test of faith.  And I want to persevere and remain “steadfast under trial” (James 1:12).  As I wait for things to start looking up, God will continue to sustain me minute by minute.❤ Thank you so much for praying for me.  I will definitely update when we know more!

By Kerissa Lee May 23, 2025
How unspeakably wonderful to know that all our concerns are held in hands that bled for us. -John Newton
By Kerissa Lee April 30, 2025
"I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world." -John 16:33- 
By Kerissa Lee April 9, 2025
Dear friends, I’d really appreciate your continued prayers. 🥺 Thank you for being on this journey with me through the good and bad. ❤️ Last year, I had a sleep study where I shared that I was diagnosed with moderate Central Sleep-Disordered Breathing (central apnea happens when the brain doesn’t tell your body to initiate breaths). It was noted that I stopped breathing about 17 times per hour. Well, my neurologist wanted me to get yet another sleep study last month to make sure this neck weakness hasn’t caused worsening apnea. And I’m sad to share that the results were much worse than last year’s. :( I thought last year was bad, but this latest study shows that I stopped breathing more than 40 times per hour (almost 400 times total through the whole night). 🥺 This was hard to hear and also such a reminder that God is the one who gives us “the breath of life” (Genesis 2:7) every minute. It’s by his mercy that we wake up to each new day. ☀️ What makes my case complex is that my esophageal sphincter has been affected by the mitochondrial disorder—it’s weak, so when air from a sleep machine is pushed down into my lungs, bad throat gurgling happens which keeps me up at night because my esophageal sphincter can’t close all the way like it should. :( My appointment with the rheumatologist was yesterday, and I wish I could say she gave a concrete diagnosis of what’s been happening these last several months…but that wasn’t the case. 🥺 I have to get more specific labs done. She also ordered x-rays of my hands and feet to check for possible spots of rheumatoid arthritis or calcinosis. The doctor said sometimes a new condition happens gradually, and it’s a wait-and-see type of situation. 😥 If these additional tests and labs still don’t give a clear cut answer, I’m so glad I have a second opinion with another rheumatologist at the end of June. This one sounds especially good because he’s a DO (doctor of osteopathic medicine) and offers a whole-body approach regarding treatment. Could you please pray something can be done soon as my quality of life continues to be rough, and these latest symptoms have been going on for half a year now. :’( Hard to believe October was 6 months ago! All this time, I’ve just been waiting.. I did ask my PCP at one of my appointments if he ever orders treatment for something even without a definite diagnosis, and he said “yes” which was encouraging to hear. His family leave is almost over, so I see him again soon. Just finished a virtual follow-up with another one of my amazing doctors this afternoon. 💜 She knows a very specialized neurologist in Washington who has his own private practice. She wants me to see him and hopes he’ll be able to connect all the dots and see the bigger picture. So blessed by all of my many doctors who try their best to help me! 🥲 I started the process in applying to the Undiagnosed Diseases program through Harvard (it got pretty delayed because of my 2 mitochondrial crashes in November and December). My application has been assigned to the Seattle clinical site. Please pray that the doctors who review my case will be able to accept me as a patient and find the genetic defect causing my mitochondrial depletion. The UDN acceptance rate is about 40%.. I saw this quote recently by Martin Luther and just had to hand letter it (so thankful for one of my neurologists who increased the anti-seizure medication which has been helping to decrease my hand tremors). ❤️ This statement by Martin Luther is such a beautiful reminder. All that’s happened lately has been the hardest trial, but I’m praying that I will persevere and bear this cross daily to bring honor to the Lord. I know my life is in his loving hands. I’m thankful for God’s promises in Romans 8:28–“And we know that for those who love God all things work together for good, for those who are called according to his purpose.” ✨