Prayer requests

Kerissa • February 2, 2021

Hi friends,

I would really appreciate your prayers.

It’s been a hard past several weeks.  I’ve been experiencing severe leg pain every day (especially at night….I’m not able to fall asleep until after 3 AM every night).  We thought it was due to my ferritin being low, so my GI specialist ordered 2 IV iron infusions.

But then, after looking at my weekly lab work, we saw that my blood calcium level has been continuing to drop (this is called hypocalcemia).  Hypocalcemia causes “neuromuscular irritability,” so my legs have been aching horribly. We’re not sure if this is due to progression of the hypoparathyroidism that I have (which is caused by my mitochondrial disease and Wilson’s Disease), so I have to get more blood work done.

I’m already on high doses of calcium every day, so my endocrinologist is having me increase a medication that I take called Calcitriol.  She’s also ordering an IV calcium infusion.  But it has to get authorized by my insurance first.  Could you pray that my insurance will authorize it quickly?  It’s so hard to wait because of how bad the pain is. :’(

On top of this, I’ve also been experiencing really bad pain in both of my wrists and the thumb-side of my hands.  I haven’t been able to hand letter, and I really miss it (the lettering pieces you may have seen me post are all older ones that I’ve saved). :’(  My hand therapist is having me wear these hand splints that she made for me.  She thinks she knows what’s going on, but I do see the orthopedic hand surgeon on February 9th to get an official diagnosis.  As you can see, it’s been really hard to have all this new pain on top of my regular chronic pain (small fiber neuropathy, headaches/migraines, back muscle spasms, etc.).

I read this verse the other day from Psalm 37:5.  It says, “Commit your way to the Lord; trust in him, and he will act.”  Just 2 verses later, it also says to “be still before the Lord and wait patiently for him.”

God tells us He WILL act for those who wait for Him (Isaiah 64:4).  I need to wait patiently, but it’s easier said than done—and it’s hard.  So very hard to deal with one thing after another.  I know I used the word “hard” so many times.  That’s because it is….but I remember all that’s happening is another test of faith.  And I want to persevere and remain “steadfast under trial” (James 1:12).  As I wait for things to start looking up, God will continue to sustain me minute by minute.❤ Thank you so much for praying for me.  I will definitely update when we know more!

By Kerissa Lee August 21, 2026
Dear friends, I just wanted to thank you all so much for praying for me during my abdominal surgery on August 6th! 💚 All of your messages/emails really encouraged my heart! If you missed my previous post, I had to have an unexpected surgery to take down the jejunostomy tract and repair an enterocutaneous fistula (a rare complication from having a j-tube for 12 years). I truly felt your prayers, and the Lord answered so many of them as well! 🥹 My surgeon only had to remove about 1 1/2 inches of my small intestine which is great news! I was in the hospital for 4 days because my blood pressure was low and pain control was rough (it’s a long story, but pain management is complex due to a specific medication I take daily at home..). But aside from that and having an allergic reaction to the surgical glue, I’ve been healing well. Thank you again for praying!! God has been so faithful throughout this journey. I got a visit from my sweet foster nephew when I was in the hospital (2nd picture)! 🥰 I can’t wait until I can show you his face—he’s so adorable. 🩵 I’ve mentioned this before, but an important medication I take causes severe insomnia (still not falling asleep until anywhere between 3 AM-9 AM). 😞 But I saw my naturopath this past Monday, and she’s going to treat me for suspected cortisol spiking up during the night (which disrupts the body’s circadian rhythm). I’m thankful for the wisdom God gives her, and I’m excited to see if this treatment will help! It will take 6 weeks to see if there’s any benefit, but I first have to specially order it.. 
By Kerissa Lee August 6, 2026
"God is our refuge and strength, a very present help in trouble." -Psalm 46:1
By Kerissa Lee July 25, 2026
Hi, friends, I thought I wouldn’t be posting for a while since I’ve been doing really well, but I’ve hit a bump in the road again and would appreciate your prayers. 💚 This past Tuesday the 21st, after nearly 12 years living with it, I had my jejunostomy tube removed completely. I thought it was going to be a simple process and that the stoma (hole) would close quickly within 30 minutes like they said. That didn’t happen, though, as the stoma started draining a ton! I couldn’t even leave the lobby and had to go back up to the clinic on the 8th floor to have an ostomy bag placed to collect all the small intestinal digestive juices that continually drained. Unfortunately, I’m experiencing a very rare complication called an enterocutaneous fistula. 🥺 I’m disappointed this is happening, but I’m not exactly surprised since my whole medical case with Mitochondrial DNA Depletion Syndrome has been rare from the very beginning.. I also don’t heal well due to connective tissue problems from Ehlers-Danlos Syndrome (case in point: my port site issues back in May when I had to have a new one surgically placed on the other side of my chest).. 😞 The clinic told me to keep emptying the ostomy bag and monitor the output. It wasn’t a fun 2 days. This whole process has definitely made me so grateful to God that I’ve never needed something like an ileostomy! TMI, but I lost almost a whole pound of fluid because so much was gushing/spurting out of the stoma every time I ate or drank. Losing so many electrolytes, I started experiencing symptoms of dehydration—weakness, high heart rate, and headaches. So yesterday, I had to go back and see the surgery resident who basically placed another j-tube (it was so painful again!). 😭 This is a temporary “plug,” and I’m bummed to say that I have to go to the operating room to have the jejunostomy tract taken down and the fistula repaired. This surgery will be happening as early as next week (it depends on my surgeon’s schedule).. She said it will be complex, especially because adhesions (scar tissue) form when a person has multiple abdominal surgeries.. I lost count what number this surgery/procedure will be, but I do know I’ve had more than 20! 😞 I know God is with me wherever I go and will supply me with the strength to endure yet another surgery like he always does. But, I’m still sad that I have to have more incisions added to my body. I shared the lyrics to this song before on an old blog post (the song is called It Is Well With My Soul by Matt Redman), but it immediately came to mind again when I was thinking of scars. As the song below said, it’s a reminder to me that my scars can be a testimony to others of God’s grace in my life and how he has brought me through every single pain and sorrow. In the Bible, I’ve always thought it’s so neat that Jesus still had his scars after he rose from the dead—he had a new body, and yet, his scars were still visible. ❤️ Our scars are a sign of grace in our lives Oh Father, how You brought us through When deep were the wounds And dark was the night The promise of Your love, You proved Now every battle still to come Let this be our song It is well (it is well) With my soul (with my soul) It is well, it is well with my soul