Waiting

Kerissa • October 2, 2012

Okay, everyone, more waiting to do.. haha  Actually, I’m getting kinda used to it.  Anyway, I saw my pain dr. this morning bright and early!  Aside from the ptosis (drooping eyelid), there’s a possibility that the headache and leg weakness could be CRPS-related, but he has to think about that more..

I’m one of 3 CRPS groups:

1. a person who gets CRPS but goes into remission (e.g., they can say they had CRPS)

2. a person who gets CRPS in, say, the foot, and it stays there and doesn’t spread at all

3. a person who gets CRPS and it becomes a whole-body spread (e.g., from the right foot, to the other foot, to the left hand, to the arm, to the back, etc.)

Can you guess which group I’m in?

You got it!  I’m group #3!

Soo, there very well could be some direct correlations..  But, as I said, he’ll need to think more on that the next few days..

I see the neurologist this Friday, and hopefully I know for sure then whether I have Myasthenia Gravis or not.  Although my electromyogram study which can test for MG was perfectly normal, the Acetylcholine Receptor Antibodies blood test I had done in the hospital came back slightly positive (the lab they sent it to sometimes gives false positive results for some reason), so they redid the test and sent it to the Mayo Clinic in Minnesota.  Isn’t that cool?

Oh yes, I start physical therapy on Wednesday so that will be good!  I gotta get rid of these crutches!

October prayer request

By Kerissa Lee • October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️

Thank you! (+ a prayer request)

By Kerissa Lee • October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3

Praises & Prayer Requests

By Kerissa Lee • September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23