What a day!

Kerissa • August 15, 2012

Since my voice is gone (I’ll explain why in a minute ;), I decided to blog now cuz I have nothing else to do…just kidding.  But really, I pretty much can’t eat or drink, and I’m so hungry since I haven’t eaten since yesterday..  Anyway , here’s the story of my day:

Once I arrived at the pain center, I got checked in and was able to see my favorite nurses.  They’re the sweetest!  I also met a new fellow.  He’s so kind and compassionate.  It’s hard to believe that this is the third set of fellows that I’ve seen so far!!  When my pain dr. came in, I asked him, “Are we ready?”  Procedures are nerve-wrecking.  He laughed and told me he’s ready emotionally!  Once I was on the procedure table in the “operating room,” my docs used ultrasound to locate all the structures and arteries for safety reasons and to try to find a good spot to block the pain.  But they had to resort to fluoroscopy only because ultrasound wasn’t giving them a good view of where to inject the medications..  Saying it was painful is an understatement.  And choosing to stay awake probably didn’t help..  They had to really dig their fingers deep into my neck to feel for the vertebrae.  It was hard to breathe cuz they were pushing so hard.  I ended up having to get “poked” twice because the first area didn’t work to inject the medications…this meant they had to dig even more!  Despite their painful probing, I’m so thankful for them.  They were able to keep a light and fun attitude in the midst of a challenging procedure.  They called me a “champ” and a “trouper,” and they kept telling me I’m doing great.  My nurse held my hand and stroked it, haha.  She’s the best.  The procedure was pretty long, so once they pulled the needle back out and sat me up, I was so relieved!  Soon after it was finished, I moved my hand and looked at it.  The swelling reduced, and the color was better!  Even the pain went from a 9 to a 1-3.  Everyone was so happy.  Within minutes, my left eye started drooping which is called Horner’s Syndrome.  Thankfully, that’s only temporary because it’s a “good” side effect of the block.  When I went down to the lobby, I suddenly lost my voice which is also another good side effect because it tells my doctors that they injected in the right place.  All through physical therapy, I had to whisper to my therapist, and he kinda had to do all the talking, haha  It was pretty humorous.  After PT, I ran into my hand therapist.  It was so nice to catch up a little bit.  He jokingly told me I’m going to waste away since I haven’t been able to eat.  I also can’t cough or yawn cuz my nerves are temporarily not able to control my vocal cords, trachea, etc.

So here I am, still not able to talk or eat well.  If I try to swallow, I sometimes choke.  My neck hurts really bad, too.  I’m trying to wait patiently for all this to pass!  I’m to keep a pain diary and record my pain level every hour for today, then once every day until I fill out the whole page.  I’ll be seeing my pain dr. in a few weeks for follow-up..  I’m not sure what’s ahead…these blocks are temporary, but I really pray the severe pain stays away for at least a month!

Thank you for your prayers!  God is good all the time!  I’m so blessed.

By Kerissa Lee May 23, 2025
How unspeakably wonderful to know that all our concerns are held in hands that bled for us. -John Newton
By Kerissa Lee April 30, 2025
"I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world." -John 16:33- 
By Kerissa Lee April 9, 2025
Dear friends, I’d really appreciate your continued prayers. 🥺 Thank you for being on this journey with me through the good and bad. ❤️ Last year, I had a sleep study where I shared that I was diagnosed with moderate Central Sleep-Disordered Breathing (central apnea happens when the brain doesn’t tell your body to initiate breaths). It was noted that I stopped breathing about 17 times per hour. Well, my neurologist wanted me to get yet another sleep study last month to make sure this neck weakness hasn’t caused worsening apnea. And I’m sad to share that the results were much worse than last year’s. :( I thought last year was bad, but this latest study shows that I stopped breathing more than 40 times per hour (almost 400 times total through the whole night). 🥺 This was hard to hear and also such a reminder that God is the one who gives us “the breath of life” (Genesis 2:7) every minute. It’s by his mercy that we wake up to each new day. ☀️ What makes my case complex is that my esophageal sphincter has been affected by the mitochondrial disorder—it’s weak, so when air from a sleep machine is pushed down into my lungs, bad throat gurgling happens which keeps me up at night because my esophageal sphincter can’t close all the way like it should. :( My appointment with the rheumatologist was yesterday, and I wish I could say she gave a concrete diagnosis of what’s been happening these last several months…but that wasn’t the case. 🥺 I have to get more specific labs done. She also ordered x-rays of my hands and feet to check for possible spots of rheumatoid arthritis or calcinosis. The doctor said sometimes a new condition happens gradually, and it’s a wait-and-see type of situation. 😥 If these additional tests and labs still don’t give a clear cut answer, I’m so glad I have a second opinion with another rheumatologist at the end of June. This one sounds especially good because he’s a DO (doctor of osteopathic medicine) and offers a whole-body approach regarding treatment. Could you please pray something can be done soon as my quality of life continues to be rough, and these latest symptoms have been going on for half a year now. :’( Hard to believe October was 6 months ago! All this time, I’ve just been waiting.. I did ask my PCP at one of my appointments if he ever orders treatment for something even without a definite diagnosis, and he said “yes” which was encouraging to hear. His family leave is almost over, so I see him again soon. Just finished a virtual follow-up with another one of my amazing doctors this afternoon. 💜 She knows a very specialized neurologist in Washington who has his own private practice. She wants me to see him and hopes he’ll be able to connect all the dots and see the bigger picture. So blessed by all of my many doctors who try their best to help me! 🥲 I started the process in applying to the Undiagnosed Diseases program through Harvard (it got pretty delayed because of my 2 mitochondrial crashes in November and December). My application has been assigned to the Seattle clinical site. Please pray that the doctors who review my case will be able to accept me as a patient and find the genetic defect causing my mitochondrial depletion. The UDN acceptance rate is about 40%.. I saw this quote recently by Martin Luther and just had to hand letter it (so thankful for one of my neurologists who increased the anti-seizure medication which has been helping to decrease my hand tremors). ❤️ This statement by Martin Luther is such a beautiful reminder. All that’s happened lately has been the hardest trial, but I’m praying that I will persevere and bear this cross daily to bring honor to the Lord. I know my life is in his loving hands. I’m thankful for God’s promises in Romans 8:28–“And we know that for those who love God all things work together for good, for those who are called according to his purpose.” ✨