5th night in the hospital

Kerissa • September 23, 2012

God has been so good to me the past week.  Every day in the hospital, I’ve seen evidence of His providence and mercy.  You want to know what made my day yesterday? I found out that Brian, a medical student that has been seeing me everyday for his neurology rotation, loves the Lord! Isn’t that so cool?  It’s a small world for sure because he goes to Solid Rock like my brother!  And, when we showed a pic of my bro, Brian told us he’s met him a couple times!  He also teaches the same little kids’ Sunday school as my brother (but a different Sunday)!  Haha!

He told me he’s praying for me and that he prays for his “patients” every night!  Feeling so blessed by him!  Pictures to come soon once I get home.

So Thursday, I had that spinal tap!  And now I’m waiting for results..  Yesterday morning, I woke up with a new and very severe headache in a different area of my brain.  The doctors came to the conclusion that this isn’t from the spinal tap, so this now adds to my mysterious case..  The inpatient pain service has been seeing me everyday because of all the pain, and I’m so thankful.  I got hooked up to a magnesium IV drip, and the doctor also has been giving me a daily dose of toradol through the IV.  It has helped immensely!

I was supposed to see the genetics team today, but for some reason, they never showed up..  So I don’t know how much longer I’ll be at the hospital.

Been praying for a young girl in a room close to me.  She has cystic fibrosis, and basically all day yesterday, she was throwing up continually. I could hear her crying and weeping, and my heart goes out to her.   Could you please pray with me for her?

Staying in the hospital really brings one up close to all the suffering there is in the world.  My heart longs for the day when there will be no more pain and no more tears!  There will be no more genetic diseases like cystic fibrosis and Ehlers-Danlos Syndrome!

Longing for Heaven,

Kerissa

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23