…and the adventure continues.

Kerissa • September 20, 2012

Just wanted to write a quick little update before I head off to bed! For those of you who don’t yet know, I’m back at the hospital because my left leg suddenly became weak on Sunday. I now have to use crutches. Add that to my drooping eye and headache! All my doctors are saying I’m a pretty tricky and mysterious case. 😉 Today I had an EMG done to test the function of my muscles in my face, arm, and leg. To say it was painful is an understatement. They had to “shock” my muscles and stick needles into them! It took about 2 1/2 hours! Not kidding that it was pure torture. I didn’t get the actual results yet, but they are now thinking I don’t have Myasthenia Gravis. 🙂 I’ll probably know for sure tomorrow. The doctors are now suspecting this to be central nervous system-related (brain and spine). They’re going to get my pain dr. on board with all this because I may have to get a spinal tap and/or my spinal cord stimulator explanted… I’ll keep all of you posted! So glad I have my own room tonight. Yesterday I had to share rooms with a lady who had a chronic wound infection! And when I was trying to fall asleep that night, I assume she had nightmares because she yelled out loud and screamed and cried out and talked in her sleep all the way through the night! A very startling experience. Thankful I had my iPod on. 😉

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23