Day 5: Raising Awareness
Unfortunately, I’m going to have to postpone Part 3 for now… Sorry about that, everyone! Typing a lot for Parts 1 and 2 has really aggravated the CRPS nerve pain. My right hand has been burning and throbbing a ton lately which makes it painful to do things.
So instead, I just wanted to share a couple articles about two young girls with mito published this week by The Washington Post and CHLA’s blog.
Dr. Richard Boles and his 10-year old patient Kylee at Children’s Hospital of Los Angeles:
http://www.wetreatkidsbetter.org/2013/09/kylees-story-advocating-for-awareness-of-mitochondrial-disease/
Dr. Boles is the medical director of Courtagen, so he will be interpreting my mitochondrial exome sequencing results! Very excited about that.
