Miscellaneous Happenings

Kerissa • June 5, 2012

Hi, friends!

It’s been a while since I last posted!  Even tho’ I had absolutely no appointments last week (yay!) because my physical therapist wanted me to take a week’s break from intense therapy, life has still been busy!  This morning, I saw my primary care dr. to go over the blood work, and all is pretty well!  My vitamin D is low as I wrote in a previous post, so I will be increasing to 4000 IU daily.  I will also be stopping my multi-vitamin and not taking any B vitamins for a while since the levels are above normal.  At the end of the year, I will have blood work once again to check all this.  Other than that, I have no new diseases which I’m very thankful for!  CRPS and EDS is enough for me.  They keep me on my toes!

I learned today that my whole medical record is 66+ pages long!!!  That’s a lot!  I so wish I could read all that’s in it.

Wednesday is PT once again, and on Thursday, I will be getting together with one of the elders at my church to recite Philippians 1 with him.  We’ve been doing this since last December and recently finished memorizing the whole book of James!  Now we’re on to Philippians, and it’s kind of been a race!  This definitely motivates me!

And the word is OUT!  I am starting to write my own book of my journey with CRPS and EDS!  I don’t know yet what will come of it, but I’m so excited to see how the Lord will lead me in this and give me the words to write.  My sister Karina is my “editor.”  She’s always wanted to be one!  I don’t know yet if I’ll self-publish or find a publisher, but either way, this has been so fun to put together!

Until next time!

Kerissa A.

October prayer request

By Kerissa Lee • October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️

Thank you! (+ a prayer request)

By Kerissa Lee • October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3

Praises & Prayer Requests

By Kerissa Lee • September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23