New Update

Kerissa • May 21, 2012

A humorous story:

I woke up yesterday morning, got ready for church, and headed downstairs to eat breakfast, putting my magnet that turns my SCS device on/off in my purse like I always do whenever I go outside.  Walking/running into church on 2 1/2 inch heels, I visited with some friends and then slipped into my seat as we all gathered into the sanctuary for worship.  Halfway through one of the songs, I noticed that I didn’t even turn my stim on since waking up in the morning!  I didn’t even notice that it was off! haha  In addition to the stimulation, it turns out that the duloxetine has been really helping the pain in my feet!  Praise Jesus.

Update:  Last Friday, I finally received my blood work results in the mail!  It isn’t the best of news…  They tested the levels of my vitamin D, B6, and B12, and my D is too low even though I pretty much take one softgel a day.  My B6 and B12 levels are waayyy too high even though I don’t even take B6 as a separate supplement!!  This might not be a concern at all, but we will soon find out when I see my pain dr.  My appointment with him is this Wednesday at 7:30 IN THE MORNING!!! :O  The earliest yet for an office visit..  I will update again soon after I see him!

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. 🙁 It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ❤️
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23