Rejoicing in Suffering

Kerissa • May 10, 2012

I recently memorized Romans 5:1-5, and it’s a beautiful passage of Scripture!

“Therefore, since we have been justified by faith, we have peace with God through our Lord Jesus Christ .  Through Him we have also obtained access by faith into this grace in which we stand, and we rejoice in hope of the glory of God.  More than that, we rejoice in our sufferings , knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.”

My friends, my journey with CRPS and EDS isn’t in vain.  That’s a truth!  This passage of Paul’s tells me that suffering produces many things: endurance, character, hope.  Which is why I aim to rejoice in my sufferings.  It’s not always the easiest, but I aim to rejoice in my finger tremors, the discoloration and coldness in my extremities, delayed motor responses, and the burning, aching pain in my feet, arm, and back.  I look at Paul’s life, and my sufferings pale in comparison to his.  He’s one of my examples—he boasted in his weaknesses because he wanted to magnify God’s grace and power in his life.  He had numerous imprisonments and countless beatings, often being near death.  He said, “Five time I received at the hands of the Jews the forty lashes less one.  Three times I was beaten with rods.  Once I was stoned.  Three times I was shipwrecked; a night and a day I was adrift at sea…in toil and hardship, through many a sleepless night, in hunger and thirst, often without food, in cold and exposure” (2 Corinthians 11:23-27).

As I go through the ups and downs, many times experiencing the CRPS pain skyrocket to an 8 on a scale of one to ten, I continually look to one of my life verses: “…I will rejoice, for I know that through your prayers and the help of the Spirit of Jesus Christ this will turn out for my deliverance, as it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body , whether by life or by death.  For to me to live is Christ and to die is gain” (Philippians 1:18-21).  As I said in my first blog post , even if you don’t have a painful chronic condition like me, join me in my goal!

Matt Hammitt has another song called Let It Bring You Praise, and it’s exactly my prayer.

Update: On Monday, I had my blood drawn in my right arm—two big tubes of blood and one little one!  It went well.  IVs are definitely worse.  And praise God, I didn’t get a CRPS flare-up in my right arm!  I just have a big bruise at the site from the EDS because my blood vessels are very fragile.  Anyway, still haven’t heard from my dr. regarding the lab work…hopefully soon, but as the saying goes, “No news is good news!”  I’m now taking duloxetine for the pain, and it’s giving me relief already even tho’ I’m not at a therapeutic dose yet.  Still on the waiting list to see Dr. Kern at the pain center for biofeedback.  He’s booked up till June 15th!!  Physical therapy’s going great.  It’s been a long process, but I can now lift my right arm sideways about 145 degrees as opposed to 90 degrees when I first got the varicella vaccine back in March!

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By Kerissa Lee April 9, 2025
Dear friends, I’d really appreciate your continued prayers. 🥺 Thank you for being on this journey with me through the good and bad. ❤️ Last year, I had a sleep study where I shared that I was diagnosed with moderate Central Sleep-Disordered Breathing (central apnea happens when the brain doesn’t tell your body to initiate breaths). It was noted that I stopped breathing about 17 times per hour. Well, my neurologist wanted me to get yet another sleep study last month to make sure this neck weakness hasn’t caused worsening apnea. And I’m sad to share that the results were much worse than last year’s. :( I thought last year was bad, but this latest study shows that I stopped breathing more than 40 times per hour (almost 400 times total through the whole night). 🥺 This was hard to hear and also such a reminder that God is the one who gives us “the breath of life” (Genesis 2:7) every minute. It’s by his mercy that we wake up to each new day. ☀️ What makes my case complex is that my esophageal sphincter has been affected by the mitochondrial disorder—it’s weak, so when air from a sleep machine is pushed down into my lungs, bad throat gurgling happens which keeps me up at night because my esophageal sphincter can’t close all the way like it should. :( My appointment with the rheumatologist was yesterday, and I wish I could say she gave a concrete diagnosis of what’s been happening these last several months…but that wasn’t the case. 🥺 I have to get more specific labs done. She also ordered x-rays of my hands and feet to check for possible spots of rheumatoid arthritis or calcinosis. The doctor said sometimes a new condition happens gradually, and it’s a wait-and-see type of situation. 😥 If these additional tests and labs still don’t give a clear cut answer, I’m so glad I have a second opinion with another rheumatologist at the end of June. This one sounds especially good because he’s a DO (doctor of osteopathic medicine) and offers a whole-body approach regarding treatment. Could you please pray something can be done soon as my quality of life continues to be rough, and these latest symptoms have been going on for half a year now. :’( Hard to believe October was 6 months ago! All this time, I’ve just been waiting.. I did ask my PCP at one of my appointments if he ever orders treatment for something even without a definite diagnosis, and he said “yes” which was encouraging to hear. His family leave is almost over, so I see him again soon. Just finished a virtual follow-up with another one of my amazing doctors this afternoon. 💜 She knows a very specialized neurologist in Washington who has his own private practice. She wants me to see him and hopes he’ll be able to connect all the dots and see the bigger picture. So blessed by all of my many doctors who try their best to help me! 🥲 I started the process in applying to the Undiagnosed Diseases program through Harvard (it got pretty delayed because of my 2 mitochondrial crashes in November and December). My application has been assigned to the Seattle clinical site. Please pray that the doctors who review my case will be able to accept me as a patient and find the genetic defect causing my mitochondrial depletion. The UDN acceptance rate is about 40%.. I saw this quote recently by Martin Luther and just had to hand letter it (so thankful for one of my neurologists who increased the anti-seizure medication which has been helping to decrease my hand tremors). ❤️ This statement by Martin Luther is such a beautiful reminder. All that’s happened lately has been the hardest trial, but I’m praying that I will persevere and bear this cross daily to bring honor to the Lord. I know my life is in his loving hands. I’m thankful for God’s promises in Romans 8:28–“And we know that for those who love God all things work together for good, for those who are called according to his purpose.” ✨