Tests and more tests..

Kerissa • January 9, 2013

First blog post of the new year!  Here’s just a little update:

Tomorrow I have my somatosensory and auditory evoked potential EEGs from 8 am-12 pm.  Let’s just say I’m not really looking forward to leaving the house at 6:50 in the morning and spending 4 hours with electrodes on my scalp and extremities.  It should be quite an experience!  Hopefully this may give us some answers.

I’ve been so exhausted from dealing with POTS and not sleeping well at all cuz my feet are going through a painful CRPS flare.  I’ve been getting shiny skin and red blister-like spots on my toes which aren’t good CRPS signs at all.  Waiting to hear from my pain dr. about all this..

Thursday my neurologist will be doing an electromyogram study on my left leg, and on Friday, I have my lumbosacral plexus MRI.

Thank you so much for your prayers!

By Kerissa Lee October 19, 2025
Dear friends, At the beginning of October, I started taking a new medication for the autoimmune disease. I thought I was tolerating it just fine, but after several days passed, I began experiencing nausea, loss of appetite, weakness all over, and increased pain. šŸ™ It’s like I’m experiencing another “mito crash.” I found out that this specific lupus medication affects mitochondria. That is, it causes an overproduction of reactive oxygen species (ROS). This, in turn, causes cell damage and oxidative stress. I sure wish the rheumatologists would have known about this before prescribing. But I have to remember that Mitochondrial DNA Depletion Syndrome is rare, and they’re not “mito experts.” Anyways, the last time I felt like this was back in May.. I’m so grateful to God that I haven’t needed to be hospitalized from this, but at the same time, I’m also sad that this happened at all, especially because I had such a nice stretch of stable health. I’d really appreciate your prayers, that this muscle weakness can resolve soon, and that this increased pain all over will get back to my baseline. Every time I have a “mito crash,” it feels like I’m fighting the flu which always sucks. The pain has been hard to bear. And whenever I’m in the thick of it, it’s difficult to remember that this too will eventually pass. 😢 Pray that I will endure and follow Jesus’ example like this passage from Hebrews 12:1-2– “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross...” Thank you all so much for praying for me. ā¤ļø
By Kerissa Lee October 4, 2025
"Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness." James 1:2-3
By Kerissa Lee September 3, 2025
"The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness." Lamentations 3:22-23